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Patient handout

Acute HF — Immune checkpoint inhibitor (ICI) cardiotoxicity / fulminant myocarditis

PRODUCTION

1. Your condition

This handout is for acute hf — immune checkpoint inhibitor (ici) cardiotoxicity / fulminant myocarditis. Your care team identified this based on: patient on active pd-1/pd-l1/ctla-4 inhibitor (nivolumab, pembrolizumab, ipilimumab, atezolizumab, durvalumab, avelumab, cemiplimab) presenting with new dyspnea, chest pain, palpitations, or syncope — ici myocarditis until proven otherwise.

Other reasons your team may use this plan: any troponin elevation in an ici patient — stat cardiology consult; treat empirically with high-dose methylprednisolone while workup proceeds (mahmood jacc 2018 pmid 29420041 — delay = death); new high-grade av block, ventricular arrhythmia, or qrs widening in ici patient (4-6 wk post-initiation peak) — fulminant ici myocarditis pattern; ici patient with myocarditis features + concomitant myositis (ck elevation), myasthenia gravis, or hepatitis — combined irae pattern with worse prognosis.

2. Your medications

Take these medications exactly as prescribed. Do not stop or change a dose without talking to your provider.

MedicationStarting doseHowWhenWhat it does
methylprednisolone1 g IV daily ×3-5 d then prednisone 1 mg/kg PO taperIVdailyMahmood JACC 2018 PMID 29420041 — high-dose steroid is FIRST-LINE; treat empirically; delay = death; ESMO + NCCN + AHA 2022 cardio-onc
abatacept10 mg/kg IV q2 weeks (5 doses)IVq2 weeksSalem RIVAL PMID 39432268 — abatacept (CTLA-4 Ig) reduces 90-day mortality in steroid-refractory ICI myocarditis; preferred salvage over infliximab in HF
mycophenolate mofetil1 g PO BIDPOBIDSteroid-sparing immunosuppressant in refractory ICI myocarditis; ESMO + NCCN guidelines support
IVIG (immunoglobulin G)2 g/kg IV divided over 2-5 daysIVas scheduledRefractory ICI myocarditis salvage; useful when concomitant myasthenia gravis or other irAE present
infliximabCONTRAINDICATED for cardiac ICI myocarditisIVdo_not_useTNF-α inhibitor worsens cardiac HF; CONTRAINDICATED for ICI myocarditis with HF or LVEF reduction; abatacept preferred salvage; only consider for non-cardiac irAE if no HF
furosemide40-80 mg IV bolus then 5-10 mg/h infusionIVas scheduledStandard ADHF diuresis; DOSE PMID 21366472
norepinephrine0.05-0.5 µg/kg/min titrate to MAP ≥65IVcontinuousSOAP-II PMID 20200382 — first vasopressor in cardiogenic shock
carvedilol3.125 mg PO BID titratePOBIDGDMT once stable; CAPRICORN PMID 11356436; ESC cardio-onc 2022 PMID 36017575
sacubitril-valsartan24/26 mg PO BID titratePOBIDPIONEER-HF PMID 30403955; ESC cardio-onc 2022 Class IIa
spironolactone12.5-25 mg PO dailyPOdailyRALES PMID 10471456; ESC cardio-onc 2022 Class I
empagliflozin10 mg PO dailyPOdailyEMPULSE PMID 35347356; ESC cardio-onc 2022 Class IIa

Plan: ICI myocarditis storm protocol — high-dose steroid first-line, abatacept salvage, infliximab CONTRAINDICATED for cardiac, plus standard ADHF backbone

3. When to call your provider

Contact your care team if any of the following happen:

  • Worsening heart pumping strength (LVEF) despite the four foundational heart-failure medications → advanced HF + transplant evaluation (cancer disease-free interval matters)
  • Recurrent troponin or new myocarditis features → admit + restart steroid + abatacept
  • Cancer progression requiring restart of cardiotoxic agent → joint cardio + onc + ethics decision (ICI rechallenge contraindicated)
  • ICD therapy delivered → urgent EP

4. When to seek emergency care

Call 911 or go to the nearest emergency room right away if you have:

  • ICI patient with troponin elevation + heart pumping strength (LVEF) drop OR high-grade AV block OR ventricular arrhythmia OR cardiogenic shock — fulminant ICI myocarditis storm requiring abatacept escalation(life-threatening)
  • ICI patient post-recovery from grade 3-4 myocarditis with rechallenge attempt — CONTRAINDICATED per Power PMID 33779739 (recurrent myocarditis ≥50%)(life-threatening)
  • Inadvertent infliximab administration in patient with ICI myocarditis and reduced heart pumping strength (LVEF) — TNF-α inhibitor worsens cardiac HF
  • Persistent troponin elevation or heart pumping strength (LVEF) drop after 24-72h of high-dose methylprednisolone — steroid-refractory ICI myocarditis demanding abatacept salvage(life-threatening)
  • Fulminant ICI myocarditis progressing to SCAI C+ cardiogenic shock — VA-ECMO bridge consideration(life-threatening)

5. Follow-up

Cardio-oncology clinic at 2 weeks, 6 weeks, 3 months, 6 months, 12 months; serial troponin + echo + MRI for surveillance; permanent ICI hold (rechallenge contraindicated per Power PMID 33779739); shared decision on alternative non-ICI cancer therapy with oncology; ICD evaluation if persistent heart pumping strength (LVEF) <35% on full the four foundational heart-failure medications; long-term steroid taper monitoring

6. Sources

Guideline: ESC cardio-oncology 2022 + Mahmood ICI myocarditis JACC 2018 + AHA cardio-oncology 2022 + Salem RIVAL abatacept refractory ICI myocarditis

  1. pubmed.ncbi.nlm.nih.gov/36017575
  2. pubmed.ncbi.nlm.nih.gov/29420041
  3. pubmed.ncbi.nlm.nih.gov/30184457