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Patient handout

DVT/VTE with Heparin-Induced Thrombocytopenia (HIT/HITT)

PRODUCTION

1. Your condition

This handout is for dvt/vte with heparin-induced thrombocytopenia (hit/hitt). Your care team identified this based on: ≥50% platelet count drop occurring 5-14 days after starting heparin (ufh or lmwh) — cardinal hit trigger; 4ts pretest probability.

Other reasons your team may use this plan: new venous or arterial thrombosis during or shortly after heparin exposure — strong hit signal even if platelets only mildly down; rapid-onset thrombocytopenia within hours of heparin exposure in patient with heparin within prior 30 days (re-exposure phenomenon — pre-existing hit antibodies); limb arterial occlusion, cerebral venous sinus thrombosis, or adrenal vein thrombosis with concurrent thrombocytopenia — pursue hit workup urgently.

2. Your medications

Take these medications exactly as prescribed. Do not stop or change a dose without talking to your provider.

MedicationStarting doseHowWhenWhat it does
argatroban2 mcg/kg/min IV (start 0.5 mcg/kg/min if hepatic impairment, multi-organ failure, or post-cardiac-surgery); titrate to aPTT 1.5-3× baseline (max 10 mcg/kg/min)IVcontinuous infusionASH 2018 (Cuker PMID 29914917); ACCP 2021 — first-line in critically ill, renal failure (no renal dose adjustment); short half-life ~45 min; reversal by stopping infusion
bivalirudin0.15 mg/kg/h IV (renal-adjusted: CrCl 30-60 → 0.1 mg/kg/h; CrCl <30 or HD → 0.05 mg/kg/h); titrate to aPTT 1.5-2.5× baselineIVcontinuous infusionASH 2018; bivalirudin half-life ~25 min; useful for short procedures (PCI, CPB) and in hepatic dysfunction; renal adjustment required
fondaparinux7.5 mg SC daily (5 mg if <50 kg; 10 mg if >100 kg)SCdailyASH 2018 — fondaparinux acceptable for HIT (off-label but evidence supports); does not cross-react with HIT antibodies in vivo (OASIS-5 background, Yusuf NEJM 2006); avoid CrCl <30; no antidote
apixaban10 mg BID × 7 d → 5 mg BIDPOBID ≥3 months for thrombosisASH 2018 — DOAC acceptable in stable HIT patients; ARC consensus 2020 (Cuker Blood Adv 2020); Linkins 2016 cohort + observational data; especially useful for transition from parenteral non-heparin AC and outpatient management
rivaroxaban15 mg BID × 21 d → 20 mg dailyPOBID then daily ≥3 monthsASH 2018; alternative DOAC for stable HIT
warfarin5 mg PO daily; ONLY START after platelets recover ≥150K and overlap ≥5 d with non-heparin AC; INR target 2-3POdaily ≥3 monthsASH 2018 — DO NOT start warfarin until platelets ≥150K and after 5-d non-heparin AC overlap; early warfarin precipitates VENOUS LIMB GANGRENE because protein C falls faster than factors II/IX/X; if warfarin started inadvertently before platelet recovery → reverse with vitamin K 5-10 mg PO/IV and continue non-heparin AC
vitamin_k_phytonadione5-10 mg PO or IVPO or IVone-timeASH 2018 — reverse early-overlap warfarin if HIT diagnosed after warfarin started; restore protein C activity to abort venous limb gangrene

Plan: Heparin-induced thrombocytopenia — STOP all heparin, non-heparin AC immediate, warfarin only after platelet recovery (ASH 2018; ACCP 2021)

3. When to call your provider

Contact your care team if any of the following happen:

  • New VTE despite AC → reassess adherence + AC adequacy + reconsider switch (DOAC ↔ warfarin)
  • Inadvertent heparin re-exposure → STAT PF4 ELISA + clinical observation
  • Pregnancy → AC switch (warfarin teratogenic; DOAC not safe in pregnancy; danaparoid or fondaparinux SC for AC in pregnancy with HIT history per ASH 2018 pregnancy)
  • Major bleed → reverse, hold, reassess indefinite indication

4. When to seek emergency care

Call 911 or go to the nearest emergency room right away if you have:

  • HIT patient inadvertently started on warfarin before platelet recovery (≥150K) — develops venous limb gangrene within days because warfarin precipitously drops protein C while procoagulant state persists(life-threatening)
  • HIT patient on therapeutic argatroban or bivalirudin develops new thrombosis or extension despite confirmed therapeutic aPTT — reassess diagnosis (concurrent APS, TTP, malignancy) and consider IVIG or plasma exchange(life-threatening)
  • PF4 ELISA returns intermediate optical density (OD 0.4-1.0) with SRA pending or negative — clinical decision-making while awaiting confirmation; continue empiric non-heparin AC if 4Ts intermediate-high; do NOT restart heparin
  • Patient with documented HIT history receives inadvertent heparin (UFH bolus, LMWH, heparin flush, heparin-coated catheter, dialysis circuit) — lifelong-avoidance education or system safeguards failed(life-threatening)

5. Follow-up

Hematology long-term follow-up; ≥3 mo AC for thrombosis (longer if ongoing risk); LIFELONG heparin avoidance education (UFH + LMWH including bridging) — medical alert bracelet permanent; future cardiac surgery exposure plan (antibody re-testing at 100 d if elective surgery requires CPB)

6. Sources

Guideline: ASH 2018 Heparin-Induced Thrombocytopenia (Cuker) + ACCP/CHEST 2021 (Stevens) for AC duration

  1. pubmed.ncbi.nlm.nih.gov/29914917
  2. pubmed.ncbi.nlm.nih.gov/34352295
  3. pubmed.ncbi.nlm.nih.gov/33007077