← Back to dossier
Patient handout

Scleroderma renal crisis (SRC) — renin-driven HTN + AKI + MAHA in systemic sclerosis

PRODUCTION

1. Your condition

This handout is for scleroderma renal crisis (src) — renin-driven htn + aki + maha in systemic sclerosis. Your care team identified this based on: systemic sclerosis (especially diffuse cutaneous, <4 yr disease) + new sbp ≥150 or ≥30 mmhg increase from baseline + aki + maha features (steen ann intern med 1990 pmid 2403473).

Other reasons your team may use this plan: acute cr rise + schistocytes on smear + low haptoglobin + elevated ldh in scleroderma patient — src pattern; scleroderma + recent prednisone >15 mg/d (or pulse steroid) → src risk (helfrich arthritis rheum 1989 pmid 2916497; steen jcr 1998); scleroderma + new htn + oliguria + headache + visual changes — src presentation.

2. Your medications

Take these medications exactly as prescribed. Do not stop or change a dose without talking to your provider.

MedicationStarting doseHowWhenWhat it does
captopril12.5 mg PO q4-6h, increase by 12.5-25 mg per dose q4-6h to BP <140/90POq4-6h titratedSteen Ann Intern Med 1990 PMID 2403473 — landmark; short-acting allows rapid titration; continue even if Cr rises (PARADOXICAL); survival benefit from <10% to >70% at 1 yr
lisinopril20-40 mg PO dailyPOdailyLong-acting maintenance after captopril stabilization; continue lifelong (Steen JCR 2003 PMID 12867255)
losartan50 mg PO daily titrate to 100 mgPOdailyEULAR 2017/2024 — ARB acceptable alternative; less efficacy data than ACEi
amlodipine5-10 mg PO dailyPOdailyCCB acceptable adjunct; ESC/ESH 2024
nicardipine5 mg/h IV titrate by 2.5 mg/h q5-15 min, max 15 mg/hIVcontinuousAcute IV adjunct; use sparingly to bridge to PO ACEi
AVOID glucocorticoid >15 mg prednisoneAVOIDN/AN/AHelfrich Arthritis Rheum 1989 PMID 2916497; Steen JCR 1998 — high-dose steroid (>15 mg prednisone) precipitates SRC; AVOID in scleroderma; if needed for myositis/arthritis use lowest effective dose + monitor BP/Cr daily
AVOID NSAIDs and nephrotoxic agentsAVOIDN/AN/ANSAIDs reduce renal blood flow + worsen AKI in SRC; minimize contrast; avoid aminoglycosides
AVOID nitroprusside long-termAVOID >24-48h or eGFR <30N/AN/ACyanide accumulation + thiocyanate; SRC patients have AKI → high cyanide risk; ACEi is the definitive therapy
Hemodialysis if oliguric + K elevated + volume overload + uremiaPer nephrologyCRRT or HDas neededSteen JCR 2003 PMID 12867255 — half of dialysis-requiring SRC patients recover renal function within 6-24 mo with continued ACEi; do NOT stop ACEi on dialysis

Plan: Scleroderma renal crisis — ACE-inhibitor FIRST and CONTINUOUS even as Cr rises (PARADOXICAL but lifesaving per Steen 1990); CCB second-line; AVOID glucocorticoid; dialysis bridge with ACEi continuation

3. When to call your provider

Contact your care team if any of the following happen:

  • BP rebound → urgent visit
  • Recurrent SRC → ED + ACEi escalation
  • New PH → pulmonology
  • New ILD progression → pulmonology

4. When to seek emergency care

Call 911 or go to the nearest emergency room right away if you have:

  • SRC + oliguria + K >6 + uremic symptoms — urgent dialysis indication while ACEi continued(life-threatening)
  • BP rebound + AKI + MAHA recurrence after ACEi dose reduction or omission — SRC recurrence (~20% of patients)(life-threatening)
  • New SRC episode within days-weeks of starting high-dose prednisone (>15 mg) for SSc-related arthritis/myositis — iatrogenic SRC(life-threatening)
  • SRC + Hgb <7 + active hemolysis (haptoglobin undetectable, LDH >2× ULN, schistocytes >5/hpf) — severe MAHA
  • SRC + new neurologic symptoms (HA, vision change, AMS, focal deficit) — PRES (posterior reversible encephalopathy syndrome) or stroke from severe HTN(life-threatening)
  • SRC + pulmonary edema + new LV dysfunction — hypertensive cardiomyopathy or scleroderma cardiac involvement(life-threatening)

5. Follow-up

Lifelong ACEi continuation even on dialysis (renal recovery up to 2 yr); rheumatology follow-up for SSc disease management; dialysis transition if persistent ESRD; renal transplant possible after 2-yr stable course; AVOID future high-dose steroid; cardiac surveillance for chronic HF; pulmonary HTN screen yearly

6. Sources

Guideline: Steen et al Ann Intern Med 1990 PMID 2403473 (landmark ACEi in SRC) + EULAR 2024 systemic sclerosis treatment update + EULAR 2017 (Kowal-Bielecka PMID 27941129) + 2025 ACC/AHA HTN (Whelton)

  1. pubmed.ncbi.nlm.nih.gov/2403473
  2. pubmed.ncbi.nlm.nih.gov/2916497
  3. pubmed.ncbi.nlm.nih.gov/27941129