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Patient handout

Post-cardiac-arrest care — arrhythmogenic right-ventricular cardiomyopathy (ARVC; PKP2 / DSP desmosomal; exercise-induced VT/VF arrest)

PRODUCTION

1. Your condition

This handout is for post-cardiac-arrest care — arrhythmogenic right-ventricular cardiomyopathy (arvc; pkp2 / dsp desmosomal; exercise-induced vt/vf arrest). Your care team identified this based on: rosc after out-of-hospital vf arrest with known arvc (prior diagnosis, prior icd, prior syncope, family history) or with sentinel pre-arrest narrative — exercise-induced collapse in young patient (often endurance athlete) with characteristic ecg changes (t-wave inversion v1-v3 beyond age 14, epsilon waves).

Other reasons your team may use this plan: post-rosc 12-lead ecg with t-wave inversion in v1-v3 beyond age 14 (padua major criterion) ± epsilon waves v1-v3 (padua major criterion; ~30% sensitivity) ± prolonged terminal activation duration ≥55 ms — pivot to arvc-specific workup including cardiac mri; witnessed arrest during exercise (running, cycling, swimming, competitive sports — particularly endurance athletes) in young patient (childhood through young adulthood) — high pretest probability for arvc; endurance exercise both trigger and disease-modifier (accelerates fibrofatty replacement); family history of sudden death <35 y, known arvc in first-degree relative, or familial pattern of exercise-induced syncope / arrhythmia — autosomal dominant pkp2 most common (~30-45%); offer genetic panel + cascade screening with cardiac mri for relatives.

2. Your medications

Take these medications exactly as prescribed. Do not stop or change a dose without talking to your provider.

MedicationStarting doseHowWhenWhat it does
nadololARVC long-term: nadolol 1-1.5 mg/kg/d PO daily (alternative to metoprolol succinate; long half-life advantage)POdaily; lifelongHRS 2019 ARVC PMID 31345875 IIa + HRS 2017 PMID 28219760 — β-blocker first-line for arrhythmia suppression in ARVC; nadolol or metoprolol succinate equivalent options
metoprolol succinateARVC long-term alternate: metoprolol succinate 25-200 mg PO daily titratedPOdaily; lifelongHRS 2019 ARVC IIa; preferred in LV-dominant / biventricular phenotype with HF (β1-selective, GDMT pillar)
sotalolARVC sustained VT or post-ICD-shock: sotalol 80-160 mg PO BID (renal dose-adjustment if eGFR <60; AVOID if eGFR <40)POBIDHRS 2017 IIa + HRS 2019 ARVC IIa — Class III + β-blocker dual mechanism; QTc surveillance mandatory; K ≥4.5 + Mg ≥2.0 mandatory; renal dose-adjustment critical
magnesium sulfate2 g IV over 5–15 min then 2 g/h infusion supportive for polymorphic VT + shivering suppression during TTM rewarmIVcontinuousAHA 2020 ACLS supportive for polymorphic VT; mandatory target ≥2.0 with sotalol initiation (QT prolongation safety)
potassium chloride20–40 mEq IV/PO until K ≥4.0 standard (≥4.5 mandatory if on sotalol)IV/POPRN until target sustainedStandard polymorphic VT supportive therapy; mandatory ≥4.5 with sotalol (Class III QT-prolonging)
norepinephrine0.05–0.5 µg/kg/min titrate MAP ≥65; cautious in ARVC (sympathomimetic load on weakened desmosomes); minimize dose; substitute vasopressin or phenylephrine when feasibleIVcontinuousSOAP-II PMID 20200382; first-line post-ROSC vasoactive; in ARVC use lowest effective dose to minimize sympathomimetic stress on desmosomal junctions
vasopressin0.03 U/min IV fixed dose (catecholamine-sparing alternative)IVcontinuousNon-adrenergic vasopressor preferred adjunct in ARVC to minimize sympathomimetic stress on weakened desmosomes
milrinone0.125–0.5 µg/kg/min IV (catecholamine-sparing inotrope alternative for biventricular ARVC with HF)IVcontinuousPDE3 pathway — non-catecholamine inotrope; preferred substitute for dobutamine in ARVC to minimize sympathomimetic stress; particularly useful in biventricular phenotype with HF
epinephrine1 mg IV q3–5 min during arrest only (ACLS standard); minimize post-ROSC infusion if alternativeIVstandard ACLS onlyAHA 2020 ACLS — standard arrest pathway; minimize post-ROSC infusion to limit sympathomimetic load
propofol5–50 µg/kg/min; titrate RASSIVcontinuousPADIS 2018; preferred sedative for post-ROSC TTM (no specific ARVC contraindication unlike Brugada)
fentanyl25–200 µg/hIVcontinuousPADIS 2018; preferred opioid for analgesia + shivering suppression during TTM rewarm
dexmedetomidine0.2–1.4 µg/kg/h; no bolusIVcontinuousPADIS 2018; α2 agonist actually REDUCES central sympathetic outflow — useful in ARVC for shivering suppression + delirium prevention
acetaminophen650 mg PO/PR/IV q6h PRNPO/PR/IVq6h PRNStandard analgesia / antipyresis; AVOID NSAIDs (fluid retention + RV adverse remodeling concern in ARVC HF)
lidocaine1–1.5 mg/kg IV bolus then 1–4 mg/min infusion bridge for refractory polymorphic VT during arrest pathwayIVcontinuous bridgeAHA 2020 ACLS standard polymorphic VT bridge; acceptable in ARVC (unlike Brugada where contraindicated); β-blocker + sotalol preferred long-term
amiodarone150-300 mg IV bolus then 1 mg/min × 6 h then 0.5 mg/min × 18 h for refractory VT bridgeIVcontinuous bridgeAHA 2020 ACLS for VT/VF; acceptable bridge in ARVC; long-term sotalol preferred per HRS 2019 IIa

Plan: ARVC post-arrest phenotype — standard post-ROSC bundle with cautious sympathomimetic minimization + LONG-TERM β-blocker + sotalol for sustained VT or post-ICD-shock + ICD pathway (HRS 2019 ARVC + ITF 2020 Class I as secondary prevention) + catheter ablation for refractory storm at expert ARVC center + LIFELONG endurance-exercise avoidance + cascade family screening with cardiac MRI

3. When to call your provider

Contact your care team if any of the following happen:

  • Recurrent ICD shock → emergent EP + storm investigation; catheter ablation evaluation expedited at expert ARVC center
  • Significant LV dysfunction progression on cardiac MRI → advanced HF clinic; transplant evaluation if end-stage
  • β-blocker / sotalol intolerance → catheter ablation evaluation; alternate β-blocker
  • Family member positive screening on cardiac MRI → cascade testing extended + EP referral
  • Mental health crisis → psychiatry; identity-loss support
  • Endurance-exercise non-compliance → reinforce education + family meeting + EP counseling; long-term progression risk emphasized

4. When to seek emergency care

Call 911 or go to the nearest emergency room right away if you have:

  • Recurrent VT (typically LBBB superior axis morphology = RV-origin) post-ROSC suggests ongoing ARVC storm physiology — esmolol IV bridge → metoprolol/nadolol PO + magnesium + sotalol bridge once stable; AVOID class I antiarrhythmics (flecainide, propafenone — proarrhythmic in scar substrate); refractory storm → urgent transfer to expert ARVC ablation center for combined endo + epicardial substrate ablation(life-threatening)
  • Inadvertent administration of class I antiarrhythmic (flecainide, propafenone) post-ROSC in confirmed or suspected ARVC — STOP drug + escalate to EP + chart audit + nursing handoff review; substitute amiodarone or lidocaine bridge if needed; class I antiarrhythmics are proarrhythmic in scar substrate per CAST framework
  • Sustained VT/VF survivor by definition meets HRS 2019 ARVC + ITF 2020 Class I ICD criteria as SECONDARY PREVENTION — implant pre-discharge or schedule within 1 wk; subcutaneous ICD considered if no pacing indication (RV-lead-related issues common with desmosomal disease); WCD bridge if ICD deferred for stabilization
  • Confirmed ARVC (or strongly suspected pending genetic results + cardiac MRI) triggers mandatory cascade screening of first-degree relatives — multimodality screening: ECG + echo + cardiac MRI (critical element — gold-standard diagnostic far superior to ECG alone) + signal-averaged ECG + 24-h Holter + exercise stress test + genetic testing at proband mutation; many newly identified relatives are asymptomatic carriers requiring lifelong surveillance + endurance-exercise counseling
  • LIFELONG ENDURANCE EXERCISE + COMPETITIVE SPORTS AVOIDANCE counseling per HRS 2019 + ITF 2020 Class I — THE most disease-modifying intervention; James 2013 + Saberniak 2014 + Sawant 2014 evidence base — endurance exercise dramatically accelerates fibrofatty replacement and disease progression; dose-response with hours/week and years; difficult conversation in young athletes (identity loss) requires multidisciplinary approach including mental health support; recreational low-intensity activity ≤6 METs titrated to symptoms

5. Follow-up

Cardiology + EP / inherited-arrhythmia clinic at 2–4 wks; CARDIAC MRI at 4–6 wk (gold-standard diagnostic; allows post-arrest stunning to resolve); GENETIC PANEL completed (PKP2/DSP/DSG2/JUP/DSC2/TMEM43/PLN); 2020 PADUA CRITERIA application + classification (definite ARVC, borderline, possible); CASCADE FAMILY SCREENING — first-degree relatives ECG + echo + cardiac MRI + signal-averaged ECG + 24-h Holter + exercise stress test + genotyping at proband mutation; β-blocker maintenance + sotalol if indicated; ICD interrogation q3–6 mo; CATHETER ABLATION at expert ARVC ablation center for refractory storm or recurrent ICD shocks despite sotalol (combined endo + epicardial substrate ablation); LIFELONG AVOIDANCE OF ENDURANCE EXERCISE + COMPETITIVE SPORTS (HRS 2019 + ITF 2020 Class I — THE most disease-modifying intervention; James 2013 + Saberniak 2014 + Sawant 2014); recreational low-intensity activity ≤6 METs titrated to symptoms; LV-dominant / biventricular phenotype HF management overlay (the four foundational heart-failure medications 4-pillar) with advanced HF therapies including transplant for end-stage; medic-alert bracelet "ARVC — endurance exercise contraindicated"; PTSD / mental health screen

6. Sources

Guideline: 2020 Padua Criteria (Corrado PMID 31676124) + HRS 2019 ARVC genetic / management statement (Towbin PMID 31345875) + ITF 2020 ICD therapy in ARVC (Cadrin-Tourigny PMID 30852048) + HRS 2017 Inherited Arrhythmia Syndromes (Al-Khatib PMID 28219760) + AHA 2020 ACLS / Post-Cardiac-Arrest Care + TTM2 + Sandroni 2021 ERC-ESICM neuroprog + James 2013 / Saberniak 2014 / Sawant 2014 endurance exercise as disease modifier + ESC 2022 VA / SCD prevention

  1. pubmed.ncbi.nlm.nih.gov/31676124
  2. pubmed.ncbi.nlm.nih.gov/31345875
  3. pubmed.ncbi.nlm.nih.gov/30852048