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Patient handout

Post-cardiac-arrest care — CPVT channelopathy (RYR2 / CASQ2; exercise- or emotion-triggered bidirectional VT → VF arrest)

PRODUCTION

1. Your condition

This handout is for post-cardiac-arrest care — cpvt channelopathy (ryr2 / casq2; exercise- or emotion-triggered bidirectional vt → vf arrest). Your care team identified this based on: rosc after out-of-hospital vf arrest with known cpvt (prior diagnosis, prior exercise-triggered syncope, family history) or with sentinel pre-arrest narrative — exertion- or emotion-triggered collapse in a young patient with normal resting ecg and structurally normal heart on echo.

Other reasons your team may use this plan: witnessed arrest during exercise (running, swimming, sports) or intense emotion (fright, anger, surprise) in a previously healthy young patient (childhood–young adulthood) with normal resting 12-lead ecg and normal echo — high cpvt pretest probability; classic phenotype; family history of sudden death <40 y, known cpvt in first-degree relative, or familial pattern of exercise-triggered syncope — autosomal dominant ryr2 most common (~55-65%); offer genetic panel + cascade screening with exercise stress test (highest yield); prior unexplained exercise- or emotion-triggered syncope (vs vasovagal pre-syncope which is provoked by upright posture / pain / heat — distinct mechanism) — strong pretest probability for cpvt; missed-opportunity diagnosis.

2. Your medications

Take these medications exactly as prescribed. Do not stop or change a dose without talking to your provider.

MedicationStarting doseHowWhenWhat it does
nadololCPVT long-term: nadolol 1.5–2.0 mg/kg/d PO daily (preferred over propranolol or metoprolol per Roston / Mazzanti CPVT registry meta-analysis — superior arrhythmia suppression; the only β-blocker with consistent registry-level efficacy)POdaily; lifelongHRS 2017 PMID 28219760 Class I + Roston CPVT registry PMID 27406239 + Mazzanti 2018 JACC PMID 29804673 — nadolol provides superior arrhythmia suppression vs propranolol or metoprolol; first-line lifelong therapy in CPVT
propranololCPVT alternate (nadolol unavailable): propranolol 2–4 mg/kg/d divided BID-QIDPOBID-QID; lifelongHRS 2017 Class I; Mazzanti 2018 — historical first-line; less effective than nadolol per Roston meta-analysis; QID dosing reduces adherence
flecainideCPVT adjunct to nadolol: flecainide 100–300 mg/d PO divided BID (target trough 0.2–1.0 µg/mL)POBID; long-termvan der Werf 2011 JACC PMID 21962432 + Watanabe 2009 Nat Med PMID 19620991 — flecainide directly blocks RyR2 in addition to Na channel, reducing diastolic Ca²⁺ leak; HRS 2017 IIa adjunct on top of β-blocker; reduces arrhythmia events
magnesium sulfate2 g IV over 5–15 min then 2 g/h infusion supportive for polymorphic VT + shivering suppression during TTM rewarmIVcontinuousAHA 2020 ACLS supportive for polymorphic VT; shivering control during TTM rewarm is critical in CPVT (shivering = catecholamine surge trigger); Mg first-line for shivering suppression
potassium chloride20–40 mEq IV/PO until K ≥4.0 supportive (not the dominant CPVT trigger but standard support)IV/POPRN until target sustainedStandard polymorphic VT supportive therapy
norepinephrine0.05–0.5 µg/kg/min titrate MAP ≥65; CAUTION in CPVT (catecholamine load); minimize dose; substitute vasopressin or phenylephrine when feasibleIVcontinuousSOAP-II PMID 20200382; first-line post-ROSC vasoactive when needed; in CPVT cohort use lowest effective dose because adrenergic load triggers RyR2 leak; consider vasopressin / phenylephrine substitute when feasible
vasopressin0.03 U/min IV fixed dose (catecholamine-sparing alternative)IVcontinuousVANISH-style catecholamine-sparing alternative; non-adrenergic vasopressor preferred in CPVT to minimize RyR2 trigger load
phenylephrine0.5–10 µg/kg/min IV titrate MAPIVcontinuousPure α1 vasopressor without β-1 stimulation — preferred substitute in CPVT to minimize adrenergic trigger; useful when NE not tolerated
epinephrine1 mg IV q3–5 min during arrest only (ACLS standard); AVOID post-ROSC infusion if alternative; CONTRAINDICATED chronic in CPVTIVstandard ACLS onlyAHA 2020 ACLS — standard arrest pathway; in confirmed CPVT post-ROSC AVOID subsequent infusions because epinephrine is the prototypical CPVT trigger
milrinone0.125–0.5 µg/kg/min IV (catecholamine-sparing inotrope alternative)IVcontinuousPDE3 pathway — non-catecholamine inotrope; preferred substitute for dobutamine in CPVT to minimize adrenergic trigger load; vasodilator + inotrope
midazolam0.02–0.1 mg/kg/h IV; titrate RASSIVcontinuousPADIS 2018; benzodiazepine for sedation + shivering suppression during TTM rewarm — adequate sedation depth blunts catecholamine surge
fentanyl25–200 µg/hIVcontinuousPADIS 2018; preferred opioid for analgesia + shivering suppression during TTM rewarm
dexmedetomidine0.2–1.4 µg/kg/h; no bolusIVcontinuousPADIS 2018; α2 agonist actually REDUCES central sympathetic outflow — useful sedation adjunct in CPVT for shivering suppression + delirium prevention
acetaminophen650 mg PO/PR/IV q6h scheduled (also shivering suppression during TTM rewarm)PO/PR/IVq6h scheduledStandard analgesia / antipyresis + shivering suppression component; QT-neutral and catecholamine-neutral
buspirone30 mg PO BID for shivering suppression (off-label TTM adjunct per BAIR-Hugger / shivering-control protocols)POBIDSerotonergic shivering suppression off-label TTM adjunct; non-catecholaminergic; Choi-style anti-shivering ladder
lidocaine1–1.5 mg/kg IV bolus then 1–4 mg/min infusion bridge for refractory polymorphic VT during arrest pathway onlyIVcontinuous bridgeAHA 2020 ACLS standard polymorphic VT bridge; acceptable in CPVT (unlike Brugada where contraindicated); β-blocker + flecainide preferred long-term

Plan: CPVT post-arrest phenotype — standard post-ROSC bundle with cautious catecholaminergic minimization + aggressive shivering control + LONG-TERM nadolol (preferred β-blocker per CPVT registry) + flecainide adjunct + ICD pathway (HRS 2017 Class I) + LCSD for refractory + cascade family exercise-stress-ECG screening

3. When to call your provider

Contact your care team if any of the following happen:

  • Recurrent ICD shock → emergent EP + storm investigation; LCSD evaluation expedited
  • New sympathomimetic drug exposure → ED + drug withdrawal + reassessment
  • Family member positive screening on exercise stress test → cascade testing extended + EP referral
  • Nadolol intolerance → LCSD evaluation; alternate β-blocker; flecainide dose optimization
  • Mental health crisis → psychiatry
  • Sports / activity non-compliance → reinforce education + family meeting + EP counseling

4. When to seek emergency care

Call 911 or go to the nearest emergency room right away if you have:

  • Recurrent bidirectional / polymorphic VT or VF post-ROSC suggests ongoing CPVT storm physiology — esmolol IV bridge + magnesium + flecainide PO load + urgent EP for LCSD evaluation; AVOID isoproterenol (CONTRAINDICATED — directly triggers RyR2 leak); minimize epinephrine + NE(life-threatening)
  • Inadvertent administration of catecholamine drug post-ROSC (isoproterenol, dobutamine, high-dose epinephrine infusion, sympathomimetic decongestant, amphetamine) in confirmed or suspected CPVT — STOP drug + escalate to EP + chart audit + nursing handoff review; substitute with catecholamine-sparing alternative (vasopressin, phenylephrine, milrinone)
  • Shivering during TTM rewarm in CPVT post-arrest is a catecholamine surge trigger — aggressive shivering control with magnesium + acetaminophen + buspirone + adequate sedation; if refractory, propofol bolus rescue + neuromuscular blockade (last-line); slow rewarm 0.25–0.5 °C/h
  • Sustained VT/VF survivor by definition meets HRS 2017 Class I ICD criteria — implant pre-discharge or schedule within 1 wk; CRITICAL — program ICD with long detection windows + ATP-first + high therapy thresholds because ICD shocks themselves trigger catecholamine surge that can PROVOKE further VT/VF (so-called "shock-storm"); ICD WITHOUT optimal nadolol + flecainide + LCSD is INADEQUATE alone in CPVT; subcutaneous ICD considered if no pacing indication; WCD bridge if ICD deferred for stabilization
  • Confirmed CPVT (or strongly suspected pending genetic results) triggers mandatory cascade screening of first-degree relatives — ECG + EXERCISE STRESS TEST (highest yield — far superior to resting ECG which is normal in CPVT) + genetic testing at proband mutation; genetic counseling referral; many newly identified relatives are asymptomatic carriers requiring lifelong management
  • Refractory CPVT despite optimal nadolol + flecainide adjunct, β-blocker intolerance, or significant ICD-shock burden → LCSD (left cardiac sympathetic denervation) evaluation per HRS 2017 Class IIa — the most effective non-pharmacologic intervention for refractory CPVT; performed at LCSD-capable inherited-arrhythmia center

5. Follow-up

Cardiology + EP / inherited-arrhythmia clinic at 2–4 wks; cardiac MRI at 4–6 wk (rule out ARVC overlap; allow post-stunning resolution); EXERCISE STRESS ECG at inherited-arrhythmia center post-stabilization (treadmill or bicycle with continuous ECG + defibrillator pads + EP supervision — diagnostic gold standard for CPVT, ~75% sensitivity even with normal resting ECG); GENETIC PANEL completed (RYR2/CASQ2 core; expanded if needed); CASCADE FAMILY SCREENING — first-degree relatives ECG + EXERCISE STRESS TEST (highest yield) + genotyping at proband mutation; nadolol maintenance + flecainide adjunct; ICD interrogation q3–6 mo; LCSD evaluation for refractory CPVT or β-blocker intolerance; LIFELONG AVOIDANCE of competitive sports (HRS 2017 Class I); recreational low-intensity activity titrated to symptoms; emotion / stress trigger management; lifelong avoidance of sympathomimetics + amphetamines + cocaine + MDMA + high-dose caffeine; medic-alert bracelet "CPVT — AVOID catecholamines + competitive sports"; PTSD / mental health screen

6. Sources

Guideline: HRS 2017 Inherited Arrhythmia Syndromes Expert Consensus (Al-Khatib PMID 28219760) + AHA 2020 ACLS / Post-Cardiac-Arrest Care + TTM2 + Sandroni 2021 ERC-ESICM neuroprog + Roston / Mazzanti CPVT registry meta-analysis (nadolol superior β-blocker) + van der Werf JACC 2011 (flecainide adjunct) + Watanabe Nat Med 2009 (flecainide RyR2 mechanism) + Wilde 2008 (LCSD efficacy) + ESC 2022 VA / SCD prevention

  1. pubmed.ncbi.nlm.nih.gov/28219760
  2. pubmed.ncbi.nlm.nih.gov/27406239
  3. pubmed.ncbi.nlm.nih.gov/29804673