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Patient handout

Cushing syndrome (endogenous + exogenous excluded)

PRODUCTION

1. Your condition

This handout is for cushing syndrome (endogenous + exogenous excluded). Your care team identified this based on: central obesity, moon facies, buffalo hump, purple striae, proximal myopathy, easy bruising (ada 2026).

Other reasons your team may use this plan: rapid weight gain, hirsutism, amenorrhea, mood change (ada 2026); new hypokalemic htn with new diabetes (ada 2026); incidental pituitary or adrenal mass (ada 2026).

2. Your medications

Take these medications exactly as prescribed. Do not stop or change a dose without talking to your provider.

MedicationStarting doseHowWhenWhat it does
ketoconazole200–400 mg BID, titratePOBID/TIDInhibits multiple steroidogenic enzymes; LFT mandatory (ADA 2026)
metyrapone250–500 mg q4hPOq4–6hRapid cortisol lowering; can cause adrenal insufficiency (ADA 2026)
osilodrostat2 mg BID, titratePOBIDLINC-3; FDA-approved Cushing disease (ADA 2026)
mitotane500 mg BID, titrate to 1–4 g/dPOTIDCytotoxic to adrenal cortex; ACC
mifepristone300 mg, titrate to 1200 mgPOdailySEISMIC — improves glucose control; UFC unchanged (ADA 2026)
pasireotide600 mcg SC BID or 10–40 mg LAR IM monthlySC/IMBID or monthlyPASPORT; hyperglycemia common (ADA 2026)
cabergoline0.5 mg twice weekly, titratePO2× weeklyOff-label (ADA 2026)
hydrocortisone15–25 mg/day dividedPOBID/TIDReplacement post-op or after enzyme inhibitor block-and-replace (Endocrine Society 2015 treatment guideline)

Plan: Medical management bridge / unresectable / recurrence (ADA 2026)

3. When to call your provider

Contact your care team if any of the following happen:

  • Severe hypoK / infection / psychosis → ED (ADA 2026)

4. When to seek emergency care

Call 911 or go to the nearest emergency room right away if you have:

  • UFC ≥5× ULN with hypokalemia + psychosis or infection (ADA 2026)(life-threatening)
  • Cushing patient hospitalised (ADA 2026)
  • Cushing disease recurrence after transsphenoidal surgery (ADA 2026)
  • Adrenal mass >4 cm, irregular margins, high HU, mixed cortisol + sex steroid excess (ADA 2026)
  • ACTH-dependent Cushing with negative pituitary MRI; consider ectopic (ADA 2026)
  • Postop hypotension with hyponatremia / hyperkalemia / hypoglycemia (ADA 2026)(life-threatening)

5. Follow-up

Endo q3–6 mo; surveillance lifelong (Cushing disease recurrence ~20%) (ADA 2026)

6. Sources

Guideline: Endocrine Society 2008 Cushing diagnosis (Nieman); 2015 treatment; Pituitary Society 2021 Cushing disease consensus (Fleseriu)

  1. pubmed.ncbi.nlm.nih.gov/18334580
  2. pubmed.ncbi.nlm.nih.gov/26222757
  3. pubmed.ncbi.nlm.nih.gov/34687601