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Patient handout

Pheochromocytoma / paraganglioma

PRODUCTION

1. Your condition

This handout is for pheochromocytoma / paraganglioma. Your care team identified this based on: classic triad — paroxysmal headache + palpitations + diaphoresis (ada 2026).

Other reasons your team may use this plan: paroxysmal htn or resistant htn (ada 2026); adrenal incidentaloma >4 cm or imaging features (high hu, intense uptake) (ada 2026); family history men2 / vhl / nf1 / sdhx (ada 2026).

2. Your medications

Take these medications exactly as prescribed. Do not stop or change a dose without talking to your provider.

MedicationStarting doseHowWhenWhat it does
phenoxybenzamine10 mg BID, titrate by 10–20 mg q2–3 d to BP <130/80 + mild posturalPOBID for 10–14 d preopEndocrine Society 2014 — irreversible α-blockade preferred
doxazosin1 mg → 8 mgPOdaily, titrateSelective α1 reversible — alternative; less reflex tachy (Endocrine Society 2014 pheo/PGL guideline)
prazosin1 mg TID, titratePOTIDAlternative selective α1 (ADA 2026)
metoprolol_tartrate12.5–25 mg BIDPOBIDβ only after α; otherwise unopposed α → crisis (ADA 2026)
propranolol20 mg TIDPOTIDAlternative non-selective; only AFTER α (ADA 2026)
amlodipine5–10 mgPOdailyAdjunct preop (ADA 2026)

Plan: Preoperative α then β blockade (ADA 2026)

3. When to call your provider

Contact your care team if any of the following happen:

  • Crisis → ED (ADA 2026)
  • Cardiomyopathy → cardiology (ADA 2026)

4. When to seek emergency care

Call 911 or go to the nearest emergency room right away if you have:

  • BP ≥180/120 with end-organ damage in patient with pheo (ADA 2026)(life-threatening)
  • β-blocker started before adequate α-blockade in pheo (ADA 2026)(life-threatening)
  • Plasma free metanephrines ≥3× upper reference limit (ADA 2026)
  • Extra-adrenal paraganglioma (head, neck, thorax, abdomen) (ADA 2026)
  • Metastatic pheochromocytoma (ADA 2026)
  • Pheo in pregnancy (ADA 2026)(life-threatening)
  • New LV dysfunction / Takotsubo / arrhythmia in pheo (ADA 2026)

5. Follow-up

Endo + surgery + genetics; lifelong annual surveillance (ADA 2026)

6. Sources

Guideline: Endocrine Society 2014 Pheo/Paraganglioma Guideline (Lenders); ENS@T-PHEO; NANETS 2021

  1. pubmed.ncbi.nlm.nih.gov/24893135
  2. pubmed.ncbi.nlm.nih.gov/33939658