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Patient handout

Pneumocystis jirovecii pneumonia (PJP/PCP)

PRODUCTION

1. Your condition

This handout is for pneumocystis jirovecii pneumonia (pjp/pcp). Your care team identified this based on: subacute progressive dyspnea + dry cough + fever in immunocompromised host (classic pjp triad).

Other reasons your team may use this plan: profound exertional desaturation with widened a-a gradient; bilateral perihilar ground-glass opacities on cxr/hrct in immunocompromised host; elevated ldh with hypoxia in hiv / transplant / chronic high-dose steroids.

2. Your medications

Take these medications exactly as prescribed. Do not stop or change a dose without talking to your provider.

MedicationStarting doseHowWhenWhat it does
sulfamethoxazole/trimethoprim15-20 mg/kg/day TMP-component IV/PO divided q6-8hIV→POq6-8hIDSA OI first-line; 21 d HIV, 14-21 d non-HIV; AKI/hyperK/BM suppression/hepatotoxicity monitoring
prednisone40 mg PO BID × 5 d → 40 mg daily × 5 d → 20 mg daily × 11 d (Bozzette taper)POtaperedBozzette NEJM 1990 (PMID 2233917) + NIH Consensus 1990 (PMID 2136587) — mortality + respiratory-failure reduction when started within 72 h of TMP-SMX in HIV severe PJP; non-HIV evidence weaker (Wang 2021 meta-analysis)
methylprednisolone30 mg IV BID equivalent to prednisone 40 mg PO BIDIVtapered per BozzetteIV equivalent of prednisone Bozzette taper for NPO patients
primaquine30 mg base PO daily (combined with clindamycin)POdailyIDSA OI preferred salvage with clindamycin; G6PD screen mandatory before initiation
clindamycin600 mg IV q6h (or 300-450 mg PO q6h)IV→POq6hPairs with primaquine; C. difficile + rash monitoring (IDSA OI)
pentamidine4 mg/kg IV daily over ≥60 minIVdailyIDSA OI — severe nephrotoxicity, pancreatitis, dysglycemia, QTc; reserved when other options exhausted
atovaquone750 mg PO BID with foodPOBIDIDSA OI — mild-moderate disease only; requires high-fat meal for absorption; not for severe disease
dapsone100 mg PO daily (combined with trimethoprim 5 mg/kg q8h for treatment; or alone for prophylaxis 100 mg daily)POdailyIDSA OI alternative for prophylaxis (alone) or treatment (with trimethoprim); G6PD screen required; methemoglobinemia + hemolysis monitoring
caspofungin70 mg IV load → 50 mg IV dailyIVdailyOff-label combination data (e.g., Lazarte-Lalo 2025 and prior reports) — non-HIV severe refractory; not standard first-line; targets cyst-wall β-glucan

Plan: PJP first-line TMP-SMX + Bozzette adjunctive steroids (HIV severe)

3. When to call your provider

Contact your care team if any of the following happen:

  • New / worsening dyspnea or fever on outpatient regimen → return to ED for re-evaluation + possible BAL (IDSA OI)
  • Rash / new cytopenias / new AKI on TMP-SMX → hold + clinic re-evaluation + switch (IDSA OI)
  • Pneumothorax-like chest pain → ED (IDSA OI)
  • IRIS features after ART start → ID + steroid adjustment (IDSA OI)

4. When to seek emergency care

Call 911 or go to the nearest emergency room right away if you have:

  • PaO2 <70 mmHg on room air OR A-a gradient ≥35 mmHg in suspected/confirmed PJP — Bozzette 1990 + NIH Consensus 1990 threshold for adjunctive corticosteroid in HIV
  • PaO2/FiO2 <200 OR mechanical-ventilation requirement OR refractory hypoxia despite NIV — life-threatening(life-threatening)
  • New pneumothorax / pneumomediastinum during PJP — cystic disease predisposes to rupture especially on positive-pressure ventilation(life-threatening)
  • TMP-SMX severe AKI / refractory hyperkalemia / severe BM suppression (ANC <500 or Plt <50k) / hepatotoxicity (AST/ALT >5× ULN) / severe rash or SJS/TEN
  • PJP in non-HIV immunocompromised host (transplant / malignancy / autoimmune-on-steroids / biologic) with PaO2 <70 OR ICU admission — mortality ~30-50% (Wang 2021 meta-analysis)
  • PJP developing despite documented TMP-SMX or alternative prophylaxis (adherence confirmed)

5. Follow-up

Secondary prophylaxis: HIV TMP-SMX 1 SS daily OR DS thrice weekly until CD4 >200 ×6 mo on ART; transplant per institutional protocol; reinforce primary prophylaxis triggers (CD4 <200, ≥20 mg pred-eq ≥4 wk, biologics, lymphoma); ART initiation if HIV-naive (2-wk delay OK); pulmonology if persistent lung impairment

6. Sources

Guideline: IDSA/CDC/HIVMA Adult/Adolescent Opportunistic Infections Guidelines (Pneumocystis section) + Bozzette NEJM 1990 RCT + NIH Consensus 1990 + ATS 2006 PCP workshop + ECIL 2016 prevention + ATS 2019 microbiologic testing CPG (Hage/Limper) + Wang 2021 non-HIV PCP meta-analysis

  1. pubmed.ncbi.nlm.nih.gov/2233917
  2. pubmed.ncbi.nlm.nih.gov/2136587
  3. pubmed.ncbi.nlm.nih.gov/17065370