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Patient handout

Neonatal Hypoxic-Ischemic Encephalopathy (HIE)

PRODUCTION

1. Your condition

This handout is for neonatal hypoxic-ischemic encephalopathy (hie). Your care team identified this based on: term/near-term neonate with low apgar + need for prolonged resuscitation + perinatal acidosis (cord ph <7.0 or be ≤ -16) (papile aap 2014 pmid 24864176).

Other reasons your team may use this plan: moderate-to-severe encephalopathy on sarnat staging (lethargy/stupor + abnormal tone + abnormal reflexes + seizures) within 6 h of life; abnormal amplitude-integrated eeg (aeeg) pattern in first hours of life (burst suppression, continuous low voltage, flat trace); sentinel event at delivery (cord prolapse, uterine rupture, placental abruption, shoulder dystocia with delay) (papile aap 2014).

2. Your medications

Take these medications exactly as prescribed. Do not stop or change a dose without talking to your provider.

MedicationStarting doseHowWhenWhat it does
therapeutic_hypothermia_33_5C_x_72hWhole-body cooling to esophageal/rectal target 33.5 °C ± 0.5 × 72 h, initiated within 6 h of life; slow rewarming 0.5 °C per hour over 6-8 hcooling_blanket_or_servo_controlled_capcontinuous × 72 h then rewarmStandard of care per NICHD whole-body cooling (Shankaran NEJM 2005 PMID 16221780) + TOBY (Azzopardi NEJM 2009 PMID 19797281) + CoolCap selective head cooling (Gluckman Lancet 2005 PMID 15721471); reduces death + moderate-severe disability NNT ~7-9
phenobarbitalphenobarbital 20 mg/kg IV load over 20 min for neonatal seizure; maintenance 5 mg/kg/day divided BIDIV (load) then IV/PO maintenanceload once, then BID maintenanceFirst-line neonatal anticonvulsant per AAP / Neofax 2024; load achieves rapid serum levels; therapeutic 20-40 mcg/mL (Neofax 2024)
levetiracetamlevetiracetam 20-60 mg/kg IV load (start 20 mg/kg; escalate by 20 mg/kg if breakthrough seizure); maintenance 30-60 mg/kg/day divided BIDIV (load) then IV/POload once, then BID maintenanceAdjunct or alternative to phenobarbital in neonatal seizure; growing evidence for non-inferiority + better sedation profile vs phenobarbital (NEONATE trial Sharpe Pediatrics 2020 — PMID lookup pending; AAP Red Book 2024-2027; Neofax 2024)
morphinemorphine 0.05-0.1 mg/kg IV q4h PRN for shivering / discomfort during cooling; continuous infusion 5-10 mcg/kg/h if frequent dosing neededIVq4h PRN or continuousComfort during cooling reduces stress-induced metabolic increase; titrate to avoid masking neuro exam (Neofax 2024). Lactation: caution if mother breastfeeds — morphine transfers into milk; monitor infant for sedation / respiratory depression per AAP Section on Breastfeeding 2022
avoid_hyperthermia_active_cooling_if_T_gt_37_5Maintain core T ≤ 37.5 °C even after rewarming completion; active cooling (turn off radiant warmer, fan) if T risespassive_or_active_coolingcontinuous monitoringHyperthermia worsens injury and reduces benefit of completed cooling; AAP / NICHD guidance

Plan: Neonatal HIE — therapeutic hypothermia + seizure control + comfort (Papile AAP 2014 PMID 24864176; NICHD/CoolCap/TOBY)

5. Follow-up

Neurology + developmental peds follow-up at 3 + 6 + 12 + 18-24 mo (Bayley III). Hearing screen (AABR) + audiology at 3 mo. Ophthalmology if cortical visual impairment suspected. PT / OT / speech / feeding therapy as needed. Anticonvulsant taper / continuation per epilepsy status. Family / parental support + grief counseling for severe outcomes.

6. Sources

Guideline: Papile L-A et al — AAP 2014 Hypothermia and Neonatal Encephalopathy (Pediatrics 2014 PMID 24864176); NICHD (Shankaran NEJM 2005 PMID 16221780) + TOBY (Azzopardi NEJM 2009 PMID 19797281) + CoolCap (Gluckman Lancet 2005 PMID 15721471) demonstrate cooling efficacy.

  1. pubmed.ncbi.nlm.nih.gov/24864176
  2. pubmed.ncbi.nlm.nih.gov/16221780
  3. pubmed.ncbi.nlm.nih.gov/19797281