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Patient handout

Persistent Pulmonary Hypertension of the Newborn (PPHN)

PRODUCTION

1. Your condition

This handout is for persistent pulmonary hypertension of the newborn (pphn). Your care team identified this based on: pre-/post-ductal spo₂ gradient > 10% (or pao₂ gradient > 20 mmhg) in term / near-term neonate — classic pphn sign.

Other reasons your team may use this plan: severe hypoxemia in term / near-term neonate with clear or minimally abnormal cxr — pure pphn phenotype; echo showing elevated rv pressure (tr jet), flat septum, r→l shunting across pda / pfo — pphn diagnostic anchor (steinhorn body of work); pphn drivers: meconium aspiration, neonatal pneumonia, asphyxia, congenital diaphragmatic hernia, late-preterm rds, idiopathic.

2. Your medications

Take these medications exactly as prescribed. Do not stop or change a dose without talking to your provider.

MedicationStarting doseHowWhenWhat it does
inhaled_nitric_oxide_iNO_20_ppmiNO 20 ppm via ventilator circuit; titrate down 5 ppm q4h based on OI response; minimum 5 ppm to avoid rebound; wean off over 12-24 hinhaled_via_ventilatorcontinuous inhaledFirst-line per Cochrane Barrington 2017 (PMID 28056166): iNO 20 ppm effective in term / near-term hypoxic respiratory failure without diaphragmatic hernia; reduces death + ECMO with NNT ~ 5. CDH cohort has reduced response (consider earlier ECMO). Composite procedural (medical gas, not a single RxCUI for inhalation form)
sildenafilsildenafil 0.5-1 mg/kg PO q6h (start at 0.5 mg/kg; titrate to response); IV form 0.4 mg/kg over 3 h then 1.6 mg/kg/day continuous (Steinhorn J Pediatr 2009 PMID 19836028)PO (preferred) or IVq6h (PO)PDE5 inhibition potentiates cGMP → pulmonary vasodilation; adjunct to iNO and weaning aid; Steinhorn et al J Pediatr 2009 (PMID 19836028) IV form well-tolerated. Lactation: limited data (Neofax 2024 caution); IV form not lactation-relevant (infant-administered)
milrinonemilrinone 0.25-0.75 mcg/kg/min IV continuous (start at 0.25; titrate); optional 50 mcg/kg loading dose over 30-60 min (consider omitting in hypotensive infants)IV continuouscontinuous infusionInotropic + vasodilatory; especially useful in PPHN with LV dysfunction or post-bypass; monitor BP closely (hypotension common); Neofax 2024
dobutaminedobutamine 5-20 mcg/kg/min IV continuous (start at 5; titrate to cardiac output and BP response)IV continuouscontinuous infusionBeta1 inotropic + mild pulmonary vasodilator; supports cardiac output without aggressive afterload increase; Neofax 2024
poractant alfaporactant alfa 200 mg/kg intratracheal (same dosing as RDS engine)intratracheal_LISA_or_INSURE_or_ETTsingle dose; may repeat 100 mg/kg if persistent needParenchymal driver (MAS, pneumonia, RDS) requires surfactant; cross-reference neonatal.respiratory-distress-syndrome.v1; Sweet 2022 + Neofax 2024
hfov_high_frequency_oscillatory_ventilationHFOV with optimal MAP titrated to lung volume on CXR; frequency 8-12 Hz typicalmechanical_ventilationcontinuousHFOV improves lung-recruitment in MAS / pneumonia / severe RDS-PPHN overlap; lung-protective for PPHN with parenchymal disease
ecmo_extracorporeal_membrane_oxygenationVV or VA ECMO per institutional protocol; weight ≥ 2 kg + GA ≥ 34 wk + reversible cause + no major CNS injuryextracorporeal_VV_or_VAcontinuous until reversibilityELSO neonatal guidelines (2023) — ECMO improves survival in OI ≥ 40 with reversible cause; CDH cohort has earlier ECMO threshold

Plan: PPHN — iNO + sildenafil + milrinone + dobutamine + surfactant for parenchymal driver; HFOV + ECMO non_pharm (Cochrane Barrington 2017 PMID 28056166; Steinhorn IV sildenafil PMID 19836028; BPD-PH Berkelhamer Steinhorn 2018 PMID 30384985)

5. Follow-up

High-risk follow-up clinic at 3-6-12-24 mo (Bayley III, neurodev). Hearing screen (AABR) before discharge + audiology surveillance (PPHN + iNO + ECMO survivors at risk for sensorineural hearing loss). Echo at 1-3-6 mo if persistent PH suspected (route to BPD-PH evaluation per Berkelhamer Steinhorn 2018 PMID 30384985). Pulmonology follow-up if BPD or chronic lung disease. RSV prophylaxis (nirsevimab) per AAP / ACIP.

6. Sources

Guideline: Berkelhamer SK, Mestan KK, Steinhorn RH — BPD-Associated PH Update (Semin Perinatol 2018 PMID 30384985, Steinhorn co-author body of work on PPHN); Cochrane Barrington 2017 (PMID 28056166) iNO for term / near-term hypoxic respiratory failure; Steinhorn IV sildenafil (J Pediatr 2009 PMID 19836028) for adjunct + weaning.

  1. pubmed.ncbi.nlm.nih.gov/30384985
  2. pubmed.ncbi.nlm.nih.gov/28056166
  3. pubmed.ncbi.nlm.nih.gov/19836028