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Patient handout

Hypersensitivity pneumonitis (acute + chronic-fibrotic)

PRODUCTION

1. Your condition

This handout is for hypersensitivity pneumonitis (acute + chronic-fibrotic). Your care team identified this based on: subacute/chronic exertional dyspnea + dry cough with a compatible antigen exposure (ats/jrs/alat 2020).

Other reasons your team may use this plan: recurrent influenza-like episodes (fever/chills/myalgia/cough) 4–8 h after antigen exposure (watts/grammer 2019 pmid 31690386); inspiratory crackles ± inspiratory squeaks/squawks ± weight loss (ats/jrs/alat 2020); hrct mosaic attenuation / air-trapping / three-density (headcheese) sign / centrilobular ggo nodules ± fibrosis (ats/jrs/alat 2020).

2. Your medications

Take these medications exactly as prescribed. Do not stop or change a dose without talking to your provider.

MedicationStarting doseHowWhenWhat it does
antigen identification + complete avoidance/remediationidentify culprit antigen (structured questionnaire ± serum IgG) then COMPLETE removal/remediation — remove birds/feather/down bedding, mold remediation, stop hot-tub/humidifier, MWF/isocyanate engineering controls or work restrictionn/apermanent; verified at every visitATS/JRS/ALAT 2020 (PMID 32706311) — antigen identification + avoidance is the CORNERSTONE and the only intervention with a survival signal; unidentified antigen confers worse prognosis. Co-manage with occupational/environmental medicine; re-exposure = treatment failure
prednisone0.5–1 mg/kg/day PO (commonly ~40–60 mg/day) for acute/inflammatory nonfibrotic HP; taper over weeks–months guided by symptoms/PFT/HRCT response (taper documented here — `taper_plan` field does NOT exist in _types.ts)POonce daily then taperedATS/JRS/ALAT 2020 — corticosteroid gives acute symptomatic/functional benefit in inflammatory HP but limited long-term disease modification; avoidance remains primary. Taper (not abrupt stop): consolidate 4–8 wk at induction dose then step down over weeks–months with symptom/PFT/HRCT reassessment; monitor glucose/BP/bone/infection during taper
methylprednisolone500–1000 mg IV daily ×3 (pulse) then transition to oral prednisone taper for acute severe HP respiratory failure / AE-like fibrotic deteriorationIVpulse ×3 then oral taperAcute severe HP / AE-like fibrotic-HP deterioration — high-dose/pulse corticosteroid is common practice with limited controlled evidence; exclude and treat infection/PE/HF first; align ICU/ECMO escalation with transplant candidacy + goals of care (ATS/JRS/ALAT 2020; AE concept from Collard-type ILD-AE definition applied to fibrotic HP)
mycophenolate mofetil500 mg PO BID titrating to 1000–1500 mg BID as toleratedPOBIDATS/JRS/ALAT 2020 — steroid-sparing immunosuppression for progressive inflammatory/chronic HP unresponsive to avoidance ± corticosteroid; stabilises lung function in observational cohorts. RxCUI 68149 (mycophenolate mofetil ingredient) NOT independently re-verified via RxNav this pass — see .depth.md §RxCUI-audit (verify-flag). CONTRAINDICATED in pregnancy (teratogen) → use azathioprine branch
azathioprine1 mg/kg/day PO, titrate to ~2–2.5 mg/kg/day (TPMT/NUDT15-informed)POonce dailyATS/JRS/ALAT 2020 — alternative steroid-sparing agent; ~61% AZA-responder rate at 12 mo and BAL lymphocytosis predicts favourable response (OR 1.051, 95% CI 1.015–1.089; Raimundo 2021 PMID 33621590). Check TPMT/NUDT15 before start; CBC + LFT surveillance. RxCUI 1256 (azathioprine ingredient) NOT independently re-verified via RxNav this pass — see .depth.md §RxCUI-audit (verify-flag)
nintedanib150 mg PO BID (100 mg BID if hepatic impairment / poor tolerance)POBID WITH FOODINBUILD HP subgroup (Wells Lancet Respir Med 2020 PMID 32145830): chronic-HP subgroup nintedanib vs placebo FVC-decline difference +73.1 mL/yr (95% CI -8.6 to 154.8); overall INBUILD progressive-fibrosing ILD annual FVC -80.8 vs -187.8 mL (Δ ~107 mL/yr; Flaherty NEJM 2019 PMID 31566307). RxCUI 1592737 confirmed correct in sibling pulm.idiopathic_pulmonary_fibrosis.v1 §RxCUI-audit 2026-05-16. Diarrhoea most common ADR; hepatotoxicity; bleeding/arterial-thromboembolic caution; CYP3A4/P-gp substrate; AVOID Child-Pugh B/C, reduce to 100 mg BID Child-Pugh A
oxygentitrate to resting SpO2 ≥90%; ambulatory O2 for exertional desaturationinhaledcontinuous if resting SpO2 ≤88%ATS/JRS/ALAT 2020 supportive — LTOT for resting hypoxemia; ambulatory O2 for isolated exertional desaturation in fibrotic HP
pulmonary rehabilitationstructured exercise + education programn/aprogram course; maintenance thereafterSupportive — improves 6MWD, dyspnea, QoL in fibrotic ILD including fibrotic HP (extrapolated from ILD rehab evidence)
lung transplant referralearly referral for progressive fibrotic HP without absolute contraindicationn/aone-time referral + ongoing co-managementLung transplant is the only disease-modifying option for end-stage progressive fibrotic HP; refer early when progressive despite avoidance + immunosuppression ± antifibrotic (ISHLT candidate-selection principles; ATS/JRS/ALAT 2020)
nonfibrotic vs fibrotic phenotype routing (axis selector)nonfibrotic → avoidance + corticosteroid ± steroid-sparing (often reversible); fibrotic → avoidance + (immunosuppression if inflammatory component) + ANTIFIBROTIC if progressive + transplant/palliativen/aat diagnosis + re-evaluated on progressionSpecial-pop branch: the ATS/JRS/ALAT 2020 nonfibrotic-vs-fibrotic dichotomy is the dominant therapeutic fork — nonfibrotic is inflammatory/often reversible (anti-inflammatory axis); fibrotic is UIP-like/progressive (antifibrotic axis, prognosis approaching IPF). Fibroblastic-foci profusion HR 2.36 (Chiba 2016 PMID 26836921) + traction-bronchiectasis HR 1.10 (Walsh 2012 PMID 22466512) gate aggressiveness
occupational / avoidable-antigen remediation + work restrictionenvironmental remediation + occupational-medicine referral; respirator/engineering controls; job modification or removal if remediation insufficient (farmer's lung, MWF, isocyanate, bird-handler)n/auntil verified antigen-freeSpecial-pop branch: occupational/avoidable antigen — the highest-leverage actionable scenario; complete avoidance can arrest or reverse nonfibrotic HP. Verify remediation success at follow-up; partial avoidance often fails
unidentified-antigen strategy (empiric remediation + lower IS/antifibrotic threshold)broad empiric environmental remediation (avian/mold/humidifier sweep) + lower threshold for steroid-sparing immunosuppression / antifibrotic + tighter FVC/DLCO surveillancen/acontinuousSpecial-pop branch: unidentified antigen confers WORSE survival (ATS/JRS/ALAT 2020) — cannot remove what is not found, so escalate pharmacologic disease modification earlier and surveil more closely
azathioprine (pregnancy — preferred steroid-sparing agent; AVOID mycophenolate)1 mg/kg/day titrating per tolerance (TPMT/NUDT15-informed); minimise corticosteroid; antifibrotic CONTRAINDICATED in pregnancyPOonce dailySpecial-pop branch: pregnancy — mycophenolate is teratogenic (contraindicated); azathioprine is the preferred steroid-sparing agent if immunosuppression needed; nintedanib contraindicated in pregnancy; minimise corticosteroid dose; co-manage with maternal-fetal medicine. RxCUI 1256 carries the same verify-flag (see .depth.md §RxCUI-audit)
nintedanib 100 mg BID (hepatic impairment — Child-Pugh A; AVOID Child-Pugh B/C) / IS renal-hepatic dose-modify100 mg PO BID (reduced) for Child-Pugh A; AZA/MMF dose-modify and intensify CBC/LFT in hepatic/renal impairmentPOBID with foodSpecial-pop branch: hepatic/renal impairment — nintedanib reduce to 100 mg BID Child-Pugh A, NOT recommended Child-Pugh B/C (DailyMed label); azathioprine + mycophenolate require dose modification and intensified marrow/hepatic surveillance in hepatic/renal impairment

Plan: HP antigen-avoidance + anti-inflammatory + steroid-sparing + antifibrotic — ATS/JRS/ALAT 2020

3. When to call your provider

Contact your care team if any of the following happen:

  • Acute severe HP / hypoxemic respiratory failure → ED (ATS/JRS/ALAT 2020)
  • AE-like deterioration of fibrotic HP (acute dyspnea + new GGO) → ED
  • FVC ≥10% relative decline in 6–12 mo despite therapy → escalate to antifibrotic + expedite transplant + palliative

4. When to seek emergency care

Call 911 or go to the nearest emergency room right away if you have:

  • Acute severe HP with hypoxemic respiratory failure after heavy antigen exposure — high fever + diffuse infiltrate + hypoxemia closely mimicking infection(life-threatening)
  • Acute-exacerbation-like deterioration of fibrotic HP — acute worsening dyspnea + new bilateral GGO/consolidation on background fibrosis not fully explained by HF/PE/infection (IPF-AE Collard-type definition applied to fibrotic HP)(life-threatening)
  • Progressive fibrotic HP — ≥10% relative FVC decline (or worsening fibrosis/symptoms) over 6–12 mo despite antigen avoidance ± immunosuppression
  • Resting oxygen level (SpO₂) ≤88% on room air in fibrotic HP
  • Patient on (or candidate for) mycophenolate who is pregnant or of childbearing potential without effective contraception
  • Fibrotic HP with poor-prognosis radiologic/histologic modifiers — UIP-like pattern, extensive fibrosis, severe traction bronchiectasis, honeycombing, high fibroblastic-foci profusion

5. Follow-up

ILD clinic q3–6 mo, occupational/environmental-medicine continuity (verify successful remediation; home/workplace inspection; respirator/work-restriction adherence), transplant clinic co-management for progressive fibrotic HP, comorbidity sweep (Group-3 PH-ILD, lung-cancer surveillance in fibrotic HP, depression, GERD), pulmonary rehab continuity, palliative care + advance care planning for progressive fibrotic HP (ATS/JRS/ALAT 2020)

6. Sources

Guideline: ATS/JRS/ALAT 2020 Hypersensitivity Pneumonitis Diagnosis Guideline (Raghu AJRCCM 2020) + INBUILD progressive-fibrosing-ILD program (HP subgroup)

  1. pubmed.ncbi.nlm.nih.gov/32706311
  2. pubmed.ncbi.nlm.nih.gov/33385222
  3. pubmed.ncbi.nlm.nih.gov/35969192