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Patient handout

Pneumocystis (jirovecii) Pneumonia

PRODUCTION

1. Your condition

This handout is for pneumocystis (jirovecii) pneumonia. Your care team identified this based on: subacute progressive dyspnea + dry non-productive cough ± low-grade fever, often with marked exertional desaturation, in an immunocompromised host (nih/cdc oi 2025).

Other reasons your team may use this plan: bilateral perihilar / diffuse ground-glass opacities on hrct (hrct ggo lr+ high in the right host; near-perfect negative predictive value if hrct normal) (nih/cdc oi 2025); elevated ldh (often >500 u/l) — sensitive but non-specific; tracks burden/response (nih/cdc oi 2025); elevated serum (1→3)-β-d-glucan in an immunocompromised host (sens ~91%; interpret post-test conditional on host pretest band — del corpo cmi 2020 pmid 32479781).

2. Your medications

Take these medications exactly as prescribed. Do not stop or change a dose without talking to your provider.

MedicationStarting doseHowWhenWhat it does
sulfamethoxazole/trimethoprim15-20 mg/kg/day TMP component PO ÷ q8h (≈ 2 DS tablets PO TID for a 70-kg adult)POq8h × 21 days (HIV)NIH/CDC OI 2025 — TMP-SMX is first-line for PJP at every severity; the combination MIN, not single-ingredient. RxCUI 10831 = sulfamethoxazole/trimethoprim RxNav-verified MIN 2026-05-16 (was 10180 sulfamethoxazole-alone — corrected).
atovaquone750 mg PO BID with a fatty mealPOq12h × 21 daysNIH/CDC OI 2025 — mild HIV-PJP only; less effective than TMP-SMX, requires fatty food for absorption. RxCUI 60212 RxNav-verified IN 2026-05-16.
dapsoneDapsone 100 mg PO daily + trimethoprim 5 mg/kg PO q8h (combination)POdaily / q8h × 21 daysNIH/CDC OI 2025; Safrin ACTG 108 (PMID 8610948) — dapsone-TMP comparable to TMP-SMX in mild-moderate. SCREEN G6PD first (hemolysis); dapsone-class cross-reactivity caveat in severe sulfonamide hypersensitivity. RxCUI 3108 = dapsone RxNav-verified IN 2026-05-16 (prior notes referenced 3008 = cyclosporine — SAFETY-CRITICAL correction).

Plan: PJP empirical regimen — severity tier × host class × sulfa-allergy / G6PD branching (NIH/CDC OI 2025)

3. When to call your provider

Contact your care team if any of the following happen:

  • Worsening dyspnea or hypoxia → ED (NIH/CDC OI 2025)
  • Rash, AKI, cytopenias on TMP-SMX → switch agent (NIH/CDC OI 2025)
  • No improvement by 7 days → ED + bronchoscopy + co-infection workup (NIH/CDC OI 2025)

4. When to seek emergency care

Call 911 or go to the nearest emergency room right away if you have:

  • PaO2 <70 mmHg on RA OR A-a gradient >35 mmHg OR resting oxygen level (SpO₂) <92% RA in confirmed/strongly-suspected PJP — moderate-severe disease (NIH/CDC OI 2025; Bozzette NEJM 1990 PMID 2233917)
  • PJP in a non-HIV iatrogenic host (rituximab/anti-TNF/chronic-steroid/transplant/chemo) — typically more abrupt, lower organism burden, lower β-D-glucan/BAL yield, and substantially higher mortality than HIV-PJP (Cilloniz 2019 PMID 31550942; Feng 2022 PMID 35313548)
  • Spontaneous pneumothorax during PJP — classic complication (NIH/CDC OI 2025)
  • No improvement or deterioration at ~7-10 days of TMP-SMX, AFTER the expected days 3-5 phase (NIH/CDC OI 2025)
  • HIV host with PJP — ART-naïve or off ART (NIH/CDC OI 2025; Zolopa ACTG A5164 PMID 19440326)

5. Follow-up

Secondary prophylaxis (TMP-SMX SS daily) until immune reconstitution — HIV: CD4 >200 ×3 mo on ART (consider stop at CD4 100-200 if VL suppressed ≥3-6 mo); non-HIV: until immunosuppression resolved. Initiate/optimize ART within 2 weeks of PJP treatment in HIV (early ART reduces progression/death — Zolopa ACTG A5164 PMID 19440326); monitor IRIS; minimize/taper the iatrogenic immunosuppressant where feasible (NIH/CDC OI 2025)

6. Sources

Guideline: 2025 NIH/CDC/HIVMA-IDSA Guidelines for the Prevention and Treatment of Opportunistic Infections in Adults & Adolescents with HIV — Pneumocystis section (clinicalinfo.hiv.gov, updated through Dec 2025; WebSearch-verified current 2026-05-16) + Bozzette/California Collaborative NEJM 1990 (adjunctive steroids) + non-HIV PJP literature (Cilloniz Expert Rev Anti Infect Ther 2019)

  1. pubmed.ncbi.nlm.nih.gov/2233917
  2. pubmed.ncbi.nlm.nih.gov/2233916
  3. pubmed.ncbi.nlm.nih.gov/32479781